Sunday, April 17, 2011

K'S STORY: "THE ONE THING THAT MADE MY OWN EATING DISORDER IMMENSELY MORE DIFFICULT WAS THE CO-MORBIDITY FROM MY OTHER MENTAL ILLNESSES. I HAD PARANOID SCHIZOPHRENIA..."


"I wanted to share my story with you because it is an out-of-the ordinary eating-disorder story and I feel that the insights I have gained from my own recovery thought process will help a lot of your readers. All of our stories are unique but the one thing that made my own eating disorder immensely more difficult was the co-morbidity from my other mental illnesses. I had paranoid schizophrenia to overcome as well, which I suffered from in silence through my teens, and did not get help for it until my early 20's after my substance abuse issues came to a head. By this point I was suicidal every day and had lost the will to live. I had mail boxes telling me to kill myself and I was mostly preoccupied with voices in my head, epic proportions of paranoia, and my eating disorder was still a big issue. I suffered from an eating disorder for 18 years and after years of having no success with therapists, dieticians, etc.

I had to rely on myself and take full responsibility for my recovery - which I have done successfully, and it is something I am very proud of. I am a firm believer that I create my own reality and I am accountable for my behaviour in an emotionally responsible- not alienating way. There is a difference. I am proud of having a healthy body, of taking up space and being able to use my voice. I have also recently learnt that a healthy person is far more of a social threat to society than someone who has starved themselves into submission and silence. I think eating disorders are a great conspiracy designed to keep women small in a world where men are feeling more threatened by the power that we have yielded socially, in our careers, etc. eating disorders are not just individual diseases.

I think they are also a manifestation of a patriarchal value system that prizes work, logic, order and routine over more feminine qualities that are massively downplayed in our culture- self-care being one of them, as well as taking the time to tune into our own emotions, honour and respect them as worthwhile parts of ourselves. As my mother was emotionally distant and has been as a result of her own mother, I absorbed her belief system unconsciously. I began to feel the same disdain for my own emotions and would often repress them. I started to see that this was not working for her and I saw a connection between my inability to nourish myself in a nutritional sense, feeling as if I 'didn't deserve' food, and a part of me that also felt I was undeserving of love and other forms of emotional and spiritual nourishment.

For me, recovery was learning how to adequately address these needs and become the caretaker for myself that I never had in my own mother, as a 26 year old woman. Loving yourself in this day and age seems like such a lofty ideal as we are being constantly told that there is something wrong with us but I am here to say that it is more than possible because the rewards of loving yourself and appreciating yourself spill out to every area of your life- your relationships, your family, your friends, your work, etc.

The best thing we can do is firstly realise that these people do not have our best interests at heart, and cultivate an organic appreciation of our own bodies- our so called 'flaws' included- as we do with our own individuality, and learn to love it in spite of the opposition coming from our culture. As women, we have natural intuitive and nurturing qualities that the more we tap into, caring for ourselves becomes second nature. It is very much at odds with the attitude towards one's body that it is like a 'sculpture' that needs to be 'refined' and 'chipped away at' like a piece of art.

The idea of body modification forces ideas on culture that the body is more of an object that can be manipulated than a living, breathing, sentient being in itself, capable of so many things. It is our unique home. Acceptance and self-love is such a powerful thing as I am only very recently discovering. Imagine a beloved pet or a baby, a small creature that can be observed and appreciated for its unique beauty. Imagine it going under the knife unnecessarily or having some surgery for the sake of its looks, how you would feel if it was your own child or pet, and you had an emotional attachment to it, and watch it getting sliced up by equipment. Does that look inhumane? Do you feel hurt? I'll bet that through the eyes of seeing something we love and care about having its very essence being manipulated would bring tears to even the most stoic person's eyes. Why is it then, that we are not able to care for ourselves and see ourselves in such a way?

I can't exactly recall when my eating disorder began. I was overweight as a child and teased at school like millions of other eating disorder sufferers. It's so clichéd, but the comments of other children ran far deeper than that- that is to say, they brought an insecurity out of me that was there in the first place and like many eating disorder sufferers I am extremely sensitive and creative. I dieted over the summer between my 2nd and 3rd grade and I was overwhelmed with compliments when I returned to school.

I was getting into fights with my mother over food, I refused to eat and made holes in the wall and started destroying property in general. I would smash windows and put running hoses through open windows at school. I was pretty out of control. Food was the only thing I could control having grown up in a chaotic household where my father was subject to numerous health problems, operations and bankruptcies that sent my mother into crisis mode trying to orchestrate rehab for him at home whilst working several jobs to send myself and my older brother and sister through a private school.

My best friend died and a family we knew died in a horrific outback car crash in 1996 and 1998 respectively, post 1998 saw me spiral into depression and anorexia promised a secret hiding place where I could withdraw and distract myself from the unpredictability and chaos of my outer life by creating chaos within. Whether or not I was uncomfortably stuffed from bingeing or completely numb and crazy out of starvation - I had found a way to manipulate my chaotic emotional states through manipulating what I put into my body. I noticed that starvation numbed me and bingeing made me feel 'too much'. I felt entirely too much, worthless, and not entitled to the space I was taking up on the planet so the need for me to shrink my physical body in order to compensate for feeling a huge lack of entitlement to taking up any space at all- made sense, in a really messed up way.

I spent my teenager years starving myself, bingeing, exercising compulsively, self-injuring... it was all a blur. Then my early 20's were mostly marred with substance abuse and schizophrenia which is its own story, but I will save that for another time and somewhere else. I can't remember many details because I was 'out of it' most of the time, but it was such an insular world of misery I had created for myself alone. It was a way to keep people's hearts at bay. To this day I still struggle with forming emotional bonds with people and being honest about my feelings when I really care for someone, but I'm getting there.

At least now I don't need my eating disorder anymore as a crutch and I no longer romanticise eating disorders at all or fantasise about being at a really low weight like I used to. I felt like I would much rather devote my thoughts to building a productive life for myself. I have quite a bit of catching up to do in a career sense as I have lost most of my teenage years and pretty much all of my 20's to mental illness, but I have still managed to complete a degree and am going on to do some further study for the next 2 years before I look for work. I think that when I finally do become financially self-sufficient it will give me a great sense of accomplishment.

It breaks my heart when I read about how many people become casualties to mental illnesses, bright, intelligent, creative people who could move mountains if they could only find a way out of their misery. I consider myself one of the 'lucky ones'. Remember that when we are well, we can move mountains and bring the change we want to see in the world, but we must change ourselves first. I believe that our current society and its values that strip people of their self esteem will not last. I think that the recent natural disasters are almost like a manifestation of the earth, which is a sentient being in itself, becoming angry with the belief systems of its inhabitants so it is bringing about change through crises. 'Crises' is the Greek word for Change I believe, and often Change only comes about from a significant crisis. Otherwise we would have no incentive to remove ourselves from our comfort zones.

A friend of mine who is a psych nurse, said to me once when I was feeling down about my lack of real progress in my life currently, is that she sees people like me going in and out of mental institutions for decades, they never seek help because they are too far gone. Knowing this makes me even more grateful to be where I am and I am grateful for every day I wake up healthy. I hope that whoever reads this gleans something positive and inspirational to help them on their own journeys :)"


Link to photo:

http://www.rhinda.ca/what-is-a-mental-disorder

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16 comments:

Bee said...

Thank you so much for sharing your story xxx

Lady Treefrog said...

This is so beautifully written and presents fantastic ideas. You're an inspiration.

Amanda Harris said...

Well written, Adorno.

Ophelia said...

Dearest K,

You are an inspiration; I also suffer from a severe mental illness and your story brought me hope this evening. Thank you for your existence, and I wish you continued health and success. With your articulate writing and perceptiveness, I am sure you will excel!

With love and respect

Anonymous said...

One of the most beautiful pieces of writing i've ever read. please write a book and know that you have helped me today.

Anonymous said...

This was beautiful, thoughtful, thought-provoking and intelligent.

I hope that you will continue to improve your well-being.

Thank you so much.

hattie said...

K and Medusa,

Thank you for making this available to read, I am a teenage girl who has recovered from anorexia and this gave me so much hope and also brought me to tears on a really tough day. Truly, thank you, you have given me and hopefully so many other people inspiration and reasons to keep fighting. One day I'd love to be as brave as you and write my story too.

jadedchalice said...

this is truly the most amazing post. I cannot tell you how very well presented these ideas are. You are a beautiful soul.
please either follow my blog, or tell me how i can follow yours! Of course id also love to know you, please contact me!

jadedchalice said...

such a beautiful post thank you for making me think about something so critical!

Anonymous said...

This is so sharp & to-the-point! And I'm so glad to see another strong woman who understands that liking your body is a revolutionary act! Thank you so much for your post.

Anonymous said...

I suffer from some personality disorder and getting anorectic too. That's why I understand all you've said (a death of the best friend too!). But unfortunately I still live in my sad imaginary world. And no one can save me.
It sounds unbelievable for me you've won.

Anonymous said...

Hi all,

This is the author. I'm not sure if I'm allowed to do this, but I've noticed others have wanted to contact me and I thought I'd leave my email address here in case. I'm sorry about the late reply, particularly to those who have wanted to get in touch with me- this was published in February and it is now November. I can be contacted at the following email address: k (dot) anon (at) ymail (dot) com. I have mangled the address to prevent spam bots. I enjoy hearing from my readers.

Re-reading my original post is surreal. I have, unfortunately, relapsed several times this year in and out of both disorders, and now am scrambling to pick up the pieces and reassemble myself. I feel as if I have a 'split' personality where half of me is well, and the other half is very destructive and unwell. I still have the insight, but Life has thrown a lot of of unexpected challenges and I lost my footing, big time.

I am writing every day and making a lot of headway into my career, which has been a blessing for me, but I am still fighting for my mental health. I believe in learning from what goes wrong/doesn't work for us in life just as much as we can from what works. It's definitely a balancing act. I am seeking to transform my destructive urges into something healthy and productive, but I am still yet to find my way.

I want to start a public blog (I have others running for different purposes) to share my insights about EDs on a more consistent basis and help generate new insights, but due to my intense need for privacy, I will not be disclosing my real name.

Thank you all so much for your comments.

Anonymous said...

I love the way you write but take some offense at your ideas, particularly on gender essentialism which I don't believe exists. Can we really divide personalities between 7 billion individuals into two arbitrary groups defined by genitalia? I am logical. I am not nurturing. I am no less female. Your words are so powerful about the need to request healing time for yourself that dressing it up in pink instead of arguing against the capitalist work force - not the devaluation of docile femininity - that it folds on itself. Sorry to be kind of a jerk. Sounds like you fought hard to listen to yourself over the voices both imagined and societal. We all have to do the same with whatever we're bringing to the table.

Anonymous said...

Hi Anon,

I apologise where offence has occurred- it was certainly not intended. I didn't intend for the gender references to be taken so literally. I was referring to masculine and feminine as archetypes which inherently lend themselves to variation. I also wrote this nearly a year ago; there is a lot I would change if I could re-write. I cringed when I initially re-read. The 'docile feminine' rhetoric is too divorced from the harsher realities of life to be sustainable. My 'relapse' has been humbling; it instilled me with the pragmatism I lacked. I had ideas about mental health/recovery I had picked up from others to 'flake off' before I could become my own person again.

Finding my truth meant I had to rebel against what I was taught. Self-love cliches will fold in on themselves if they're not substantiated through other means and outlets. The chaos of life prevails, and the best we can do is ride the waves. But this is not fodder for a Sociology essay. Merely a personal account of my experience of schizophrenia and an eating disorder. Whatever you choose to take away from it and read into it is your issue.

Vincente Ricci said...

I was reading this blog for a few minutes for the past few days and have been extremely enlightened about anorexia ect. Unfortunately, I have also read that you believe that anorexia is a conspiracy created by men to repress women because we are afraid of losing our "superior" status. This separation of gender, in my opinion, is an ignorant generality. I do realize that i may not know everything as I am not even out of high school and I do apologize if my tone is a bit harsh. That being said, i do encourage you to stay healthy and am very happy to hear that you successfully recovered on your own. I love your individuality and cannot encourage your motivation enough. Getting started is always the hardest part, no matter what the issue is.

Anonymous said...

OMG,hun,I'm a paranoid schizophrenic,too,and have been dieting since I was 8.I have been struggling with and ED for at least 12 years (mostly bulimia) and have been stuck in mental clinics multiple times and electroshocked.I wonder if it would be ok with you to give tips/advice on how to cope.I'm starting to figrure my way out of the mess,but,as you know,it is incredibly difficult.Is there a way I can PM you my e-mail,and would it be ok with you to talk to me?I wish you the best of luck,babes!XXX